Dementia Supports: Where are we now?
Thanks to the input and support of people like you, new investments have been made into Ontario dementia care over the past couple of years. This includes funding for new First Link® Care Navigators in local Alzheimer Societies, providing direct service to thousands of people living with dementia and their care partners, helping them to access local education, supports, and programs. We are making progress, but now is not the time to step back. There is still more work to be done.
More Support is Needed
People living with dementia have the right to live the best life possible – in the place of their choice – with dignity and quality care. Care partners are not getting the support they need. We know that community-based support services including education, individual and group support, and respite are critical for families impacted by dementia.
We, as advocates, must make sure our provincial government remains committed to community-based dementia supports and services. Join us and spread the word: People living with dementia, their care partners, and families need enhanced support to live well at home and in the community. Add your voice now.
Make your voice heard.
YES, I want my government to invest more in community-based supports for families impacted by dementia.
Why are community supports so important?
Today, there are approximately 240,000 people in Ontario living with dementia. As our population ages, the number of people living with dementia is soaring, and will double by the year 2038.
Care support stress
Caring for an individual diagnosed with dementia is physically, mentally, and emotionally challenging. Nearly half of dementia care partners experience distress and more than 20% feel unable to continue caring at home due to stress.
Staying at home
Over 60% of Ontarians with dementia live in the community; many want to stay in their homes for as long as possible. Community-based supports have been shown to delay or avoid admission to long-term care, helping more people stay where they want to be: at home.
Real People. Real Stories.
Read about the real impact dementia has on the live of patients and their families.
“I found out later that the Community Care Access office is in the same building as my doctor’s office in South Eastern Ontario. When I look back at this time, I find it so odd that not one of these people in the medical community referred me to Community Care Access. I will always wonder if we could have set up support for her (and us) as soon as she arrived, if the ugliness of the months to come could have been avoided.”
“My mother has often said that she lost both her husband and herself. Her life became about her husband’s care. She couldn’t take part in her book club, walking group, or go out and spend time with her children or grand children. She was isolated by her role as a care partner, and she lost her identity.”
“It’s different when they’re older, in a way. For my husband to have dementia at age 62…it changes everything. I’ve got my mind around the fact that my husband and I won’t have a social life together and that we can no longer travel together. Our normal life is gone.”
“Trying to navigate the road to a long-term care home is very difficult. The process is kept deliberately vague. When I tried to get more information about when he would be admitted to long-term care or hospital, the most anyone could tell me was, ‘You’ll just know.’ As someone who was already witnessing the advanced impact of the disease on my father, I found that very frustrating. That was the one answer I couldn’t get from anybody.”
“My sister is only 55 years old, physically fit, and younger than the large majority of people who are living with the disease. She’s really a minority. Everything in terms of Alzheimer’s care in our community is geriatric-focused. Because of her age, she’s even more isolated.”
Has Dementia Changed Your Life?
Do you or someone you love have dementia? We want to hear from you – tell us how dementia has changed your life. Share your story with us.