Make supporting people living with dementia and their care partners a priority.Ask your MPP to demonstrate continued support for a fully funded dementia strategy in the provincial budget. LEARN MORE
Dementia Strategy: Where are we now?
Last year, because of the input of people like you, we achieved an investment of $101 million over three years for a provincial dementia strategy. This funding was dedicated towards formalizing a strategy to support people living with dementia and those who care for them through better coordinated and enhanced services. This was a great achievement, but there is still more work to do.
As a first step in implementing the provincial dementia strategy, the Ontario Government announced expansion of the Alzheimer’s Society First Link program, which will provide thousands of people living with dementia and their care partners with the services of a First Link Care Navigator who will help them access local education, supports and programs. This expansion means that new First Link Care Navigators will be hired at local Alzheimer Societies around the province.
We, as advocates, must make sure that all of Ontario’s political parties are committed to a fully funded dementia strategy in the next provincial budget and beyond June’s election. Join us and spread the word: People living with dementia, their care partners and families need enhanced support to live well at home and in the community. Tell your MPP.
Why does Ontario need a dementia strategy?
Today, there are approximately 200,000 people in Ontario living with dementia. As our population ages, the number of people with dementia is soaring. By 2038, it is expected that this number could double to 400,000.
Care support stress
Caring for an individual diagnosed with dementia is extremely challenging. In Ontario, individuals caring for persons with dementia report stress levels 3x higher other care partners.
Need for community supports
There is an urgent need for more and improved community supports. With rising numbers and limited long-term care capacity, the system is over-stretched and relies too much on family care partners.
Real People. Real Stories.
Read about the real impact dementia has on the live of patients and their families.
“I found out later that the Community Care Access office is in the same building as my doctor’s office in South Eastern Ontario. When I look back at this time, I find it so odd that not one of these people in the medical community referred me to Community Care Access. I will always wonder if we could have set up support for her (and us) as soon as she arrived, if the ugliness of the months to come could have been avoided.”
“My mother has often said that she lost both her husband and herself. Her life became about her husband’s care. She couldn’t take part in her book club, walking group, or go out and spend time with her children or grand children. She was isolated by her role as a care partner, and she lost her identity.”
“Trying to navigate the road to a long-term care home is very difficult. The process is kept deliberately vague. When I tried to get more information about when he would be admitted to long-term care or hospital, the most anyone could tell me was, ‘You’ll just know.’ As someone who was already witnessing the advanced impact of the disease on my father, I found that very frustrating. That was the one answer I couldn’t get from anybody.”
“My sister is only 55 years old, physically fit, and younger than the large majority of people who are living with the disease. She’s really a minority. Everything in terms of Alzheimer’s care in our community is geriatric-focused. Because of her age, she’s even more isolated.”
Has Dementia Changed Your Life?
Do you or someone you love have dementia? We want to hear from you – tell us how dementia has changed your life. Share your story with us.